First time at CHUM? Need help finding your way to the neurology department? Here are resources to guide you and help you better prepare for your appointment.
Virtual tour
Arrival by metro
Elevators and parking
Below you'll find a series of links to organizations, services and resources that our patients have found helpful in understanding your condition. If you have an additional resource that you feel would be helpful to others, please contact us and we'll add it to our list below.
Epilepsy clinics in Quebec
- CHUM Epilepsy Clinic launch
The Epilepsy Clinic at CHUM caters to adult patients. This French-speaking institution is located in downtown Montreal.
- CHU Sainte-Justine Epilepsy Clinic launch
The epilepsy clinic at CHU Sainte-Justine (French-speaking facility) is open to all pediatric patients (under 18).
- Epilepsy clinic at the CHU de Québec launch
The CHU de Québec epilepsy clinic is for all pediatric patients (under 18) in Quebec City.
- Epilepsy clinic at the Montreal Children’s Hospital launch
The Neurology Department at the Montreal Children's Hospital is a bilingual facility for pediatric patients (under 18 years of age).
- Montreal Neurological Institute-Hospital launch
The Montreal Neurological Institute, located in Montreal, is a bilingual institution serving all adult patients.
More resources and informations on epilepsy
- TÉCUM at the CHUM launch
You can also find the TÉCUM program on the CHUM website.
- TÉCUM at the CHU Sainte-Justine launch
You can also find the TÉCUM program on the CHU Sainte-Justine website.
- More information on epilepsy launch
Want to know more about epilepsy, from cause and symptoms to treatments and more? Here's a link to help you find out. This information is provided in French, supported by the CHU de Québec.
- Educational videos on epilepsy launch
Want to learn more about the different types of seizures (focal motor seizures, myoclonic seizures, etc.)? CHU Sainte-Justine has created educational videos (in French) to answer your questions.
- ÉPI-TAVIE launch
"A virtual intervention aimed at better understanding and managing your epilepsy." ÉPI-TAVIE
- SUDEP Aware (Sudden Unexpected Death in Epilepsy) launch
To find out more about sudden and unexpected death in epilepsy, please visit SUDEP Aware. This Canadian site is only available in English.
- SAAQ Resources launch
Are you unfamiliar with driving regulations for people with epilepsy? The Société de l'assurance automobile du Québec website provides all the information and rules for driving in Quebec.
Epilepsy associations
- Quebec Epilepsy Association (AQE) launch
"Since 1960, the Association Québécoise de l'Épilepsie has been supporting and accompanying Quebecers living with epilepsy and their loved ones, raising awareness of the condition among the general population and contributing to scientific research efforts in neurology." AQE
- Canadian League Against Epilepsy launch
"The Canadian League Against Epilepsy is an organization of social educators, advocates, medical professionals and basic scientists with over 200 members." CLAE
- Canadian Epilepsy Alliance launch
"The Canadian Epilepsy Alliance (CEA) is a pan-Canadian network of organizations dedicated to promoting independence and improving the quality of life of people living with epilepsy and their families, through support services, information and public awareness." CEA
- Epilepsy Foundation launch
"Working with the community and network partners, the foundation connects the people, data and resources needed to solve the challenging health problems associated with seizures." Epilepsy Foundation
- Epilepsy Society UK launch
"The UK's only charity transforming the lives of people with epilepsy through cutting-edge research, advocacy and care." Epilepsy society
- Épilepsie Montérégie launch
"Épilepsie Montérégie is a non-profit organization. We provide awareness, support, intervention, promotion and advocacy for people living with epilepsy and their families." Épilepsie Montérégie
- Epilepsie Section Quebec launch
Non-profit organization dedicated to supporting individuals living with epilepsy and their families. Its approach is centered on reception, listening, support, and information, with the goal of improving the well-being of those affected. The organization offers a range of services tailored to the needs of people with epilepsy, families, health and education professionals, as well as employers.
Below you'll find a series of links to organizations, services and resources that our patients have found helpful in understanding your condition. If you have an additional resource that you feel would be helpful to others, please contact us and we'll add it to our list below.
Tuberus Sclerosis Complex
- TSC Canada launch
"TSC Canada is a voluntary, non-profit, volunteer organization that was established in 1990 to provide awareness and support for people with BTS and their families." TSC Canada
- TSC Alliance launch
"TSC Alliance is an internationally recognized non-profit organization that does whatever it takes to improve the lives of people with TSC." TSC Alliance
- Association Sclérose Tubéreuse de Bourneville (astb France) launch
"The association Sclérose Tubéreuse de Bourneville France (ASTB France) was founded in 1991. It is an association under the law of 1901, managed and run by volunteers." ABTB France
- CHU Sainte-Justine TSC video launch
Want to know more about TSC? CHU Sainte-Justine offers educational videos to help you better understand this condition. You can learn about genetic factors, the different manifestations (skin, heart, kidneys) and much more.
Other specific diseases
- Dravet Syndrome – Dravet Canada launch
Would you like to learn more about Dravet syndrome or find resources about this condition? We invite you to visit Dravet Canada.
- LSG Foundation (Lennox-Gastaut Syndrome) launch
"The Lennox-Gastaut Syndrome (LGS) Foundation is a non-profit organization dedicated to improving the lives of those affected by LGS by promoting research, awareness, education and family support." LSG Foundation
Below you'll find a series of links to organizations, services and resources that our patients have found helpful in understanding your condition. If you have an additional resource that you feel would be helpful to others, please contact us and we'll add it to our list below.
Resources for Transition to Adulthood
- ParentCap18 launch
A platform designed to provide solutions tailored to the administrative challenges faced by many families of children with special needs as they turn 18. It addresses financial, legal, health, and social services aspects. ParentCap18 also offers a practical toolbox to support families during this transition.
- Parachute Program launch
The Parachute Program at CHU Sainte-Justine is designed to support adolescents and young adults—as well as their families—through the transition from pediatric to adult health care. It offers a structured pathway that includes tools such as self-assessment questionnaires, informational video clips, and the “Ready Steady Go” program to ease this essential transition.
- Got Transition launch
A national program dedicated to improving the process of transitioning from pediatric to adult health care. It provides evidence-based strategies and resources for clinicians, youth, young adults, and their families to ensure a smooth and effective transition. The program is an initiative of the National Alliance to Advance Adolescent Health.
- Transition at the Montreal Children’s Hospital launch
The Montreal Children’s Hospital offers a transition program to support adolescents with chronic or complex conditions as they move from pediatric to adult care. This process is supported by the hospital’s care team and the PATH-ETAP (Pediatric to Adult Transition Hub), which provides tools and guidance to ensure a successful transition.
Resources for Caregivers of Patients with Physical or Intellectual Disabilities
- L’Étoile de Pacho launch
L’Étoile de Pacho is a mutual aid network for parents of children with disabilities. Its mission is to create favorable conditions for the development of parents of severely disabled children by providing services and tools to support the adaptation process, develop their ability to act, and encourage social inclusion.
- Centre Philou launch
Centre Philou is here to provide respite and improve the quality of life for families of children with multiple disabilities. It offers services such as respite stays with overnight care, a specialized school, a specialized daycare, and family support and guidance.
- L’accompagnateur launch
L’accompagnateur is a free, bilingual (French and English) online platform designed to support parents and caregivers of individuals with disabilities across Quebec. Developed by parents for parents, it offers a comprehensive directory of over 1,700 resources tailored to various types of disabilities, age groups, and regions.
- Appui pour proches aidants launch
Appui pour proches aidants is a resource dedicated to caregivers in Quebec. It provides support, advice, and resources for individuals who care for a loved one who has lost autonomy due to aging, illness, or disability.
- Proche aidance Québec launch
Proche aidance Québec is a resource for caregivers in Quebec. Founded in 2000, it brings together 124 community organizations that support more than 41,000 caregivers across the province. These organizations offer a range of services, such as psychosocial support, counseling, and respite care, to help ease the challenges associated with a loved one's illness, aging, or disability.
- SACCADE launch
SACCADE, the center of expertise in autism, consists of a multidisciplinary team of professionals specializing in autism. It offers a comprehensive range of services for individuals with autism, their families, and professionals in the field.
- Bibliosanté launch
Bibliosanté consists of a series of 16 thematic booklets offering quality resources related to diseases and topics affecting healthcare users and their families. The diseases and subjects covered by these booklets include autism spectrum disorders, intellectual disabilities, mental health, and caregivers. The resources discussed are primarily those available in the province of Quebec.
- Intellectual Disabilities Booklet launch
Want to understand intellectual disabilities or consult a directory of works for caregivers? We invite you to explore this thematic booklet.
- Autism Spectrum Disorder Booklet launch
Want to understand the needs of people with autism spectrum disorder or consult a directory of works for caregivers? We invite you to explore this thematic booklet.
Government and Financial Resources
- Finautonome launch
Finautonome is a community-based organization dedicated to the financial well-being of people with disabilities. It offers guidance and educational tools to help individuals access financial aid programs and government tax measures, aiming to improve their financial well-being through skill development.
- Office des personnes handicapées du Québec launch
The Office des personnes handicapées du Québec is a governmental organization that works to increase the social participation of people with disabilities.
- Office des personnes handicapées du Québec – Search Tool launch
The Office produces guides, reports, analyses, opinions, and memorandums on various topics affecting people with disabilities.
- Access Desk for DI, TSA, and DP launch
The access desk serves as a single-entry point for requests related to intellectual disabilities (DI), autism spectrum disorder (TSA), developmental delays, and physical disabilities (DP). It provides referrals to specialized rehabilitation services and both primary and secondary care services.
- Service Request Form for DI-TSA-DP Access Desk launch
This form is required to access rehabilitation services for individuals with intellectual disabilities (DI), autism spectrum disorder (TSA), or physical disabilities (DP). It is used to initiate the evaluation process and gain access to specialized services offered by CIUSSS. The form can be completed by a doctor, healthcare professional, school, or the individual themselves. If completed by the individual, the contact information of the professional who referred them is necessary to ensure proper follow-up on the decision.
Devices for Epilepsy
- Seizure Monitors and Medical Alert Systems for the Home launch
Want to learn more about seizure monitors and medical alert systems? We invite you to visit this webpage, supported by the Association Québécoise de l'Épilepsie.
- Night Seizure Detectors -SeizSafe launch
"SeizSafe is a system that monitors the sleep of people who experience seizures so that their caregivers can assist them, even during the night." – SeizSafe
- NightWatch launch
"NightWatch remotely alerts caregivers in the event of a possible seizure during sleep." – NightWatch
- Assistance Dog for Epilepsy launch
Want to learn more about assistance dogs for epilepsy? We invite you to visit this webpage.
- Assistance Dog for Young People with Autism Spectrum Disorder (ASD) launch
The Mira Foundation offers an assistance dog program for young people aged 5 to 21 with Autism Spectrum Disorder (ASD). This program aims to improve the quality of life for these young people and their families by providing a dog specially trained to meet their specific needs.
- Smartwatch and Mobile Application launch
Want to learn more about smartwatches and mobile apps dedicated to epilepsy? We invite you to visit this webpage, supported by the Association Québécoise de l'Épilepsie.
- Medical Identification Clothing and Accessories launch
Want to learn more about connected clothing and medical identification accessories? We invite you to visit this webpage, supported by the Association Québécoise de l'Épilepsie.
- Anti-Suffocation Pillow launch
Want to learn more about anti-suffocation pillows? We invite you to visit this webpage, supported by the Association Québécoise de l'Épilepsie.
